RDCC Staff

Executive Director

Stacey Frisk

Director, Public Affairs & Operations

Yoko Rosenbaum

Executive Committee

Chair

Del Lebel
Alexion, AstraZeneca Rare Disease

Vice Chair

Curt Oltmans
Fulcrum Therapeutic

Treasurer

Christopher Porter
Travere Therapeutics

General Member-at-Large

Kathryn Lowell
BioMarin Pharmaceuticals

Member-at-Large, Clinical / Pre-Clinical

Matt Winton
Inozyme Pharma

Member-at-Large, Commercial

Diane Berry
Sarepta Therapeutics

Committee Chairs

Federal Policy Committee Co-Chair

Lisa Kahlman
Ultragenyx

Federal Policy Committee Co-Chair

Aaron Krupp
Agios Therapeutics

Communications Committee Co-Chair

Andrea Hofelich
Alexion, AstraZeneca Rare Disease

Communications Committee Co-Chair

Joey Fleury
Ultragenyx