RDCC Staff

Executive Director

Director, Public Affairs & Operations

Senior Manager, Government Affairs

Executive Committee

Chair

Chris Porter
Travere Therapeutics

Vice Chair

Mike Mattoon
Acadia Pharmaceuticals

Secretary

Aaron Krupp
Agios Pharmaceuticals

Treasurer

Ailyn Abin
Recordati Rare Diseases

Member-at-Large, General

Kathryn Lowell
BioMarin Pharmaceutical

Member-at-Large, Commercial

Doug Sheehy
Mirum Pharmaceuticals

Member-At-Large, Pre-Commercial

Curt Oltmans
Fulcrum Therapeutics

Committee Chairs

Federal Policy Committee Co-Chair

Lisa Kahlman
Ultragenyx

Federal Policy Committee Co-Chair

Aaron Krupp
Agios Therapeutics

Communications Committee Co-Chair

Andrea Hofelich
Alexion, AstraZeneca Rare Disease

Communications Committee Co-Chair

Joey Fleury
Ultragenyx