RDCC Staff

Executive Director

Stacey Frisk

Director, Public Affairs & Operations

Yoko Rosenbaum

Senior Manager, Government Affairs

Gabbi Salmon

Executive Committee

Chair

Del Lebel
Alexion, AstraZeneca Rare Disease

Vice Chair

Curt Oltmans
Fulcrum Therapeutic

Treasurer

Christopher Porter
Travere Therapeutics

General Member-at-Large

Kathryn Lowell
BioMarin Pharmaceuticals

Member-at-Large, Clinical / Pre-Clinical

Matt Winton
Inozyme Pharma

Member-at-Large, Commercial

Diane Berry
Sarepta Therapeutics

Committee Chairs

Federal Policy Committee Co-Chair

Lisa Kahlman
Ultragenyx

Federal Policy Committee Co-Chair

Aaron Krupp
Agios Therapeutics

Communications Committee Co-Chair

Andrea Hofelich
Alexion, AstraZeneca Rare Disease

Communications Committee Co-Chair

Joey Fleury
Ultragenyx