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03.22.23

RDCC Urges Congress to Reject Proposals that Undermine the Intent of Accelerated Approval for Rare Disease Patients

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03.14.23

RDCC Sends Letter of Support for Four Rare Disease Bills to Minnesota State Legislators and Expresses Concern for Fifth Bill that Threatens Drug Development 

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01.09.23

Learn more about how the Orphan Drug Act enables researchers to discover breakthrough cures for rare diseases

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12.06.22

RDCC Submits Comments on Equal Employment Opportunity Commission’s FY 2022-2026 Draft Strategic Plan

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12.06.22

Join RDCC in Support of The Orphan Drug COVID-19 Mitigation Act

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11.03.22

Arbitrary Price Controls have a Negative, Disproportionate Impact on Rare Disease Treatment Development

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09.15.22

RDCC Urges Swift Action to Reauthorize PDUFA in Letter to Congressional Leaders

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09.01.22

Understanding and Modernizing Newborn Screening

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08.24.22

Comments Submitted to Colorado PDAB on Draft Proposed Rule Concerning the Affordability Review of Prescription Drugs

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06.06.22

A Patient-Centric Approach to Evaluate Rare Disease Treatments

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05.16.22

The Orphan Drug Tax Credit is a Proven Catalyst for Investment and Treatment Development

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04.28.22

RDCC Supports Policy Proposals That Recognize the Potential of Rare Disease Therapies and Reinforce the Role of the Accelerated Approval Pathway

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04.14.22

The Rare Disease Company Coalition Expresses Concern to CMS on Oregon’s Application for a Section 1115 Demonstration Waiver

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03.30.22

RDCC Offers Endorsement of the Bipartisan BENEFIT Act in Support of Patient Engagement in Drug Development

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02.24.22

Our Policy Focus Areas

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01.14.22

The Rare Disease Company Coalition Submits Comments on Oregon’s Application for a Section 1115 Demonstration Waiver

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10.20.21

Video: The Challenges of “One-Size-Fits-All” Approaches to Healthcare Policy Reform

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09.17.21

Existing Value Frameworks to Negotiate Pricing for Rare Disease Drugs Disproportionately Impacts People Suffering from Rare Diseases ​​

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