Updates - Rare Coalition

New Bill Protects Continued Development for Rare Disease Medicines

RDCC Participates in FDA Rare Disease Day 2023 Public Meeting

Hopes, Fears for Orphan Drug Act

Vital Health Podcast: The Accelerated Approval Pathway is Vital for Rare Disease Treatments

RARECast Podcast: Examining the Legislative Landscape for Rare Disease Drug Development

Groups Hope New Congress Will Pass Bipartisan Bills Centered on Rare Diseases

New Study Finds Patient Access to Rare Disease Drugs Would Decline Sharply Under Proposals to Limit Medicaid Reimbursements

RDCC Joins in Call for Repeal of R&D Tax Policy that Hurts Rare Disease Innovation

RDCC Joins in Support of “Newborn Screening Saves Lives Reauthorization Act of 2021” in Letter to Senate Leaders

RDCC Advocates for “Newborn Screening Saves Lives Reauthorization Act of 2021” in Letter to Congressional Leaders

Cutting the Orphan Drug Tax Credit is Not Drug Pricing Reform

Rare Disease Drugmakers to Congress: Don’t Gut the Accelerated Approval Pathway

Drug Makers To Congress: Reject Accelerated Approval Pay Reforms

Rare Disease Companies Unite to Advocate for Life-Changing Therapies